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A word about breast cancer

August 4, 2007 by Susan Getgood

Cross posted to Snapshot Chronicles

Just before BlogHer, I started reading Toddler Planet, the blog of an incredibly courageous woman who had to change her plans to attend the conference because she had been diagnosed with inflammatory breast cancer, a particularly nasty and often undetected form of breast cancer, and her chemo was scheduled to start the same week.

She has written a post about the disease and asked fellow bloggers to repost as much or as little of it as they wished. Please spread the word, and if you are so inclined, make a donation to Susan G. Komen for the Cure.

Here is WhyMommy’s post:

We hear a lot about breast cancer these days. One in eight women will be diagnosed with breast cancer in their lifetimes, and there are millions living with it in the U.S. today alone. But did you know that there is more than one type of breast cancer?
   

I didn’t. I thought that breast cancer was all the same. I figured that if I did my monthly breast self-exams, and found no lump, I’d be fine.

Oops. It turns out that you don’t have to have a lump to have breast cancer. Six weeks ago, I went to my OB/GYN because my breast felt funny. It was red, hot, inflamed, and the skin looked…funny. But there was no lump, so I wasn’t worried. I should have been. After a round of antibiotics didn’t clear up the inflammation, my doctor sent me to a breast specialist and did a skin punch biopsy. That test showed that I have inflammatory breast cancer, a very aggressive cancer that can be deadly.
   

Inflammatory breast cancer is often misdiagnosed as mastitis because many doctors have never seen it before and consider it rare. “Rare” or not, there are over 100,000 women in the U.S. with this cancer right now; only half will survive five years. Please call your OB/GYN if you experience several of the following symptoms in your breast, or any unusual changes: redness, rapid increase in size of one breast, persistent itching of breast or nipple, thickening of breast tissue, stabbing pain, soreness, swelling under the arm, dimpling or ridging (for example, when you take your bra off, the bra marks stay – for a while), flattening or retracting of the nipple, or a texture that looks or feels like an orange (called peau d’orange). Ask if your GYN is familiar with inflammatory breast cancer, and tell her that you’re concerned and want to come in to rule it out.

There is more than one kind of breast cancer. Inflammatory breast cancer is the most aggressive form of breast cancer out there, and early detection is critical. It’s not usually detected by mammogram. It does not usually present with a lump. It may be overlooked with all of the changes that our breasts undergo during the years when we’re pregnant and/or nursing our little ones. It’s important not to miss this one.
   

Inflammatory breast cancer is detected by women and their doctors who notice a change in one of their breasts. If you notice a change, call your doctor today. Tell her about it. Tell her that you have a friend with this disease, and it’s trying to kill her. Now you know what I wish I had known before six weeks ago.

You don’t have to have a lump to have breast cancer.
   

teamwhymommy

 

P.S. Feel free to steal this post too.  I’d be happy for anyone in the blogosphere to take it and put it on their site, no questions asked.  Dress it up, dress it down, let it run around the place barefoot. I don’t care.  But I want the word to get out.  I don’t want another young mom — or old man — or anyone in between — to have to stare at this thing on their chest and wonder, is it mastitis?  Is it a rash?  Am I overreacting?  This cancer moves FAST, and early detection and treatment is critical for survival.
   

Thank you.

Filed Under: BlogHer, Community

Birthday Reading List

July 5, 2007 by Susan Getgood

So is it Monday or Thursday?

Doesn’t matter to me because today is my birthday and I am pretty much goofing off, playing with puppies and clearing out my feed reader of all that good stuff I "saved for later."

Enjoy!

Marianne Richmond in The Blogstorm: If you sell your soul, how much should you get for it? has some terrific insights on blogger relations.

The Common Craft Show, fast becoming a favorite for its simple explanations of complex Web 2.0 topics, explains social networking.

In the category of not to be believed, AdRants tells us of a client demanding that its agency AE ask permission to take a vacation…

Speaking of passive-aggressive, if you haven’t checked out passive-aggressive notes.com, do it today for a real gem.

And have a terrific weekend!

Tags: blogger relations, social networking

Filed Under: Advertising, Blogger relations, Humour, Social networks

Are you LinkedIn to my Facebook?

June 13, 2007 by Susan Getgood

Work is a little light this month so I’ve been taking advantage of the lull to explore the two major, public social networks — Facebook and LinkedIn. As always through the lens of discovering how a tool can be useful in business.

It’s not hard to find the business angle for LinkedIn.  Salespeople and job seekers have been using it since the beginning to expand their networks and connect with potential prospects and employers.  Especially in high tech.

Who do you want to meet? Do a search to find out if someone in your network knows the person you’d like to know. Not connected directly? You can use a LinkedIn introduction to get connected, although I haven’t done so yet. No one I want to meet that badly, I guess.

Pretty useful. Pretty established. In that specific niche. But it’s not terribly sticky. You log in, look and leave.

It’s a network, but it’s not a community. What’s the difference? My opinion only, YMMV. A social network connects individuals. A community interacts. We expect members of a community to have something in common, a reason to converse with others. Yup, the old C word again: Conversation.

You won’t have a community without one or more social networks to provide the connections, but a network is not necessarily a community.

But it seems LinkedIn would like to be a community. Otherwise, why would it have community evangelist Mario Sundar on staff? The question is, can it become a community? Should it?  What can be added to the experience that would make it one? Why not leave well enough alone and continue to do what it does so well for so many?

Well, the answer is of course, what if another service comes in and manages to do both — make connections and facilitate conversations? Something like oh uh, Facebook?

Facebook is fast becoming much much more than the Internet version of the college facebook. If that were all it was, I wouldn’t bother.

The open API makes all the difference. Third party developers are linking their tools into Facebook, so now I can have all the "stuff" in one place. Twitter. RSS. Flickr. Movie reviews. And not so much my stuff as my friends’ stuff.  Because it’s not just about connecting. It’s about sharing information. Where we are. What we are doing. What our friends are saying. That’s what makes it a community.   

The principal drawback of Facebook is that it is hard to find people. You need to know their email address or stumble upon them in a group or a friend’s friends. This security measure is a legacy of the product’s initial user base: college and high school students, and an important one. It’s one thing if an adult shares her personal information. Quite another if a 9th grader does so.

The Facebook platform helps people who already know each other stay connected. But it’s not the best place to make a new connection. For that, you probably still want to use LinkedIn.

What do I really want? Something that does both.  Loosely manage and access an extended network of contacts with space for playing and connecting with  friends. One UI, one log-in and one password please.

Quick take:  Based on what we can publicly see about the two companies and assuming they want to play in the sandbox, Facebook will have an easier time doing this than LinkedIn. It has first mover advantage with the open platform and a loyal user base among the people entering the workforce.

Plus, it is way more fun. As Beth Kanter twitted last week: Facebook is like crack. Internet crack. I’ve only been using it for a little while, but am fast becoming addicted. Last night, I messed around looking for other Getgoods. Just because, let’s face it, it’s not like looking for Smiths or Joneses. And discovered that I am the oldest Getgood currently on Facebook. By a longshot. A dubious distinction, but oh well. 

Speaking of Twitter…. I’ve started using it just to give a periodic status. Something I want to share, with my Twitter and Facebook friends and blog readers, but don’t plan to write about. A pointless WebEx. The puppies born last week. Etc. Perhaps if I were traveling more, I’d use it to talk with friends and colleagues. Like Josh Hallet did last night when he was stranded in DC.

What do you think? How are you using these new social media tools? Are you?

Bonus Question: What about MySpace? Is it still relevant as a community platform or is it becoming just a blogging platform with music?

Tags: Facebook, Twitter, LinkedIn, social network, community

Filed Under: Community, Social networks

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